Strengthening the Capacity of AIDS Care Volunteers for Community-Based Homecare: A Participatory Pathway to Stigma Reduction and Social Transformation
Abstract
HIV-related stigma remains a major barrier to effective homecare for people living with HIV (PLHIV). This community service program focused on empowering AIDS Care Volunteers in Bandung, Indonesia. The program aimed to enhance knowledge, caregiving skills, and social acceptance toward PLHIV. Thirty AIDS care volunteers participated in a capacity strengthening workshop co-designed and implemented using a Community-Based Participatory Research (CBPR) approach. Activities included participatory learning sessions, role-play simulations, group reflections, and collective action planning. Evaluation combined pre–post testing and qualitative reflections. Results showed significant improvements in HIV knowledge (t = –7.60, p<0.001) and social acceptance (Z = –4.026, p<0.001). Participants also demonstrated increased critical awareness, emergence of local leadership, and stronger collaboration with the Bandung City AIDS Commission. These outcomes highlight the potential of community-based empowerment programs to reduce stigma and strengthen sustainable HIV care.
Downloads
References
Beckman, Mary, and Joyce F. Long. Community-Based Research: Teaching for Community Impact. In Community-Based Research: Teaching for Community Impact. 2023. https://doi.org/10.4324/9781003443544.
Boston, P. Qasimah, Bruce Strouble, Aisha Balogun, Beto Lugo-Martinez, Mildred McClain, Mary Miaisha Mitchell, Kim Wasserman, David Rahn, Molly Greenberg, and Cecilia Garibay. “Community Voices on the Experiences of Community-Based Participatory Research in the Environmental Justice Movement.” Social Sciences 12, no. 6 (2023). https://doi.org/10.3390/socsci12060358.
Bresser, Inge De, Toine E.P. Remers, Monse W.M. Wieland, Rozar Prawiranegara, Adiatma Y.M. Siregar, and Rob Baltussen. “Prioritizing HIV/AIDS Prevention Strategies in Bandung, Indonesia: A Cost Analysis of Three Different HIV/AIDS Interventions.” PLoS ONE 14, no. 8 (2019). https://doi.org/10.1371/journal.pone.0221078.
Dushkova, Diana, and Olga Ivlieva. “Empowering Communities to Act for a Change: A Review of the Community Empowerment Programs towards Sustainability and Resilience.” Sustainability 16, no. 19 (October 2024): 8700. https://doi.org/10.3390/su16198700.
Khosa, Jeffries Zwelithini, and Priscilla Gutura. “The Roles of Social Workers and Community Volunteers in Providing Services to Foster Care Children Living with HIV in South Africa: A Scoping Review.” In Social Work and Social Sciences Review, vol. 24. Preprint, 2023. https://doi.org/10.1921/SWSSR.V24I2.2014.
Larki, Mona, and Robab Latifnejad Roudsari. “Home-Based Care, the Missing Link in Caring of Patients Living with HIV/AIDS and Their Family Members: A Narrative Review.” In International Journal of Community Based Nursing and Midwifery, vol. 8. no. 3. Preprint, 2020. https://doi.org/10.30476/ijcbnm.2020.82771.1085.
Nyblade, Laura, Pia Mingkwan, and Melissa A. Stockton. “Stigma Reduction: An Essential Ingredient to Ending AIDS by 2030.” In The Lancet HIV, vol. 8. no. 2. Preprint, 2021. https://doi.org/10.1016/S2352-3018(20)30309-X.
Obeagu, Emmanuel Ifeanyi, and Getrude Uzoma Obeagu. “A Review of Knowledge, Attitudes and Socio-Demographic Factors Associated with Non-Adherence to Antiretroviral Therapy among People Living with HIV/AIDS.” International Journal of Advanced Research in Biological Sciences 10, no. 9 (2023).
Ramalho, Tania. “Paulo Freire, Communication, and Conscientization for Liberation.” In The Handbook of Global Interventions in Communication Theory. 2022. https://doi.org/10.4324/9781003043348-20.
Super, Sabina, Laurens W.A. Klerkx, Niels Hermens, and Maria A. Koelen. “A Multilevel Transition Perspective on Embedding Intersectoral Action in Local Health Policies.” Health Promotion International 36, no. 4 (2021). https://doi.org/10.1093/heapro/daaa131.
Taliep, Naiema, Samed Bulbulia, Sandy Lazarus, and Mohamed Seedat. “Community-Based Participatory Research (CBPR) as an Emancipatory Modality Promoting Social Transformation, Empowerment, Agency, and Activism.” In The Palgrave Handbook of Innovative Community and Clinical Psychologies. 2022. https://doi.org/10.1007/978-3-030-71190-0_24.
Tran, Bach Xuan, Mercedes Fleming, Huyen Phuc Do, Long Hoang Nguyen, and Carl A. Latkin. “Quality of Life Improvement, Social Stigma and Antiretroviral Treatment Adherence: Implications for Long-Term HIV/AIDS Care.” AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV 30, no. 12 (2018). https://doi.org/10.1080/09540121.2018.1510094.
UNAIDS. “In Danger: UNAIDS Global AIDS Update 2022.” In In Danger: UNAIDS Global AIDS Update 2022. 2022. https://doi.org/10.18356/9789210019798.
Wen, Fangfang, Yang Wang, Bin Zuo, Jian Yang, Yalan Qiao, Hanxue Ye, and Zengqi Luo. “Space-Focused Stereotypes About People Living With HIV/AIDS and the Effects on Community-Approaching Willingness.” Frontiers in Psychology 13 (April 2022). https://doi.org/10.3389/fpsyg.2022.772639.
Yigit, Ibrahim, Bulent Turan, Gülşah Kurt, Sheri D. Weiser, Mallory O. Johnson, Michael J. Mugavero, and Janet M. Turan. “Longitudinal Associations of Experienced and Perceived Community Stigma With Antiretroviral Therapy Adherence and Viral Suppression in New-to-Care People With HIV: Mediating Roles of Internalized Stigma and Depression Symptoms.” Journal of Acquired Immune Deficiency Syndromes 95, no. 3 (2024). https://doi.org/10.1097/QAI.0000000000003360.
Copyright (c) 2025 Engagement: Jurnal Pengabdian Kepada Masyarakat

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
