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Turnitin Quality of Life of Mothers of Children with Intellectual Disability: Do Social Support, Maternal Stress and Socio-Economic Status Play a Role?
Main Article Content
Keywords:
children with intellectual disability, maternal stress, perceived social support, socio-economic status, quality of life
This study investigate the influence of perceived social support, maternal stress and socio-economic status on quality of life of mothers of children with intellectual disability, Oyo State, Nigeria. A total of 93 mothers of children with intellectual disability were respondents to a structured questionnaire. Findings revealed that perceived social support and socio-economic status had significant positive relationship with quality of life of mothers of children with intellectual disability. Result showed that the relationship between maternal stress and quality of life was negative and significant. Moreover, the study revealed that perceived social support had the highest relative contribution on quality of life of mothers followed by socio-economic status while the least was by maternal stress. Furthermore, the joint contribution of perceived social support, maternal stress and socio-economic status on quality of life of mothers was significant; therefore, the three variables should be given proper consideration so as to enhance quality of life mothers of children with intellectual disability.
References
Ahmadizadeha, Z. Rassafianib M. Khalilia, M.A Mirmohammadkhanic, M (2015) Factors Associated with Quality of Life in Mothers of Children with Cerebral Palsy in Iran. Hong Kong Journal of Occupational Therapy, 25; 15-22 https://doi.org/10.1016/j.hkjot.2015.02.002
Ajuwon PM, & Brown I. (2012) Family quality of life in Nigeria. Journal of Intellectual Disability Research; 56:61 70. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2788.2011.01487.x
Aras, I. (2014). The quality of life of parents of children with hearing impairments and speech. Doctoral thesis. Zagreb University School of Medicine in Zagreb
Bahar A, Bahar G, Savaş HA, & Parlar S. (2009) Engelli çocukların annelerinin depresyon ve anksiyete düzeyleri ile stresle başa çıkma tarzlarının belirlenmesi (Determination of depression and anxiety levels, and stress coping styles of mothers of children with disabilities) Fırat Sağlık Hizmetleri Dergisi;4:97-112.
Beach Center on Disabilities. (2006). Family Quality of Life Scale. Beach Center on Disabilities, Lawrence, KS, USA.
Bishop SL, Richler J, Cain AC & Lord C. (2007) Predictors of perceived negative impact in mothers of children with autism spectrum disorder. America Journal of Mental Retardation, 112:450-61. DOI: 10.1352/0895-8017(2007)112[450:POPNII]2.0.CO;2
Buratta V, Frova L, Gargiulo L, Gianicolo E, Prati S, Quattrociocchi L. (2003) EUROHIS - Developing Common Instruments for Health Surveys. Copenhagen:
Cakaloz B, & Kurul S. (2005) The investigation of duchenne muscular dystrophy children's family functions and their mothers' depression and anxiety levels. Journal of Clinical Psychiatry; 8:24-30
Carter B., & McGoldrick M. (2005). The expanded family life cycle, (3rd ed). Boston: Allyn and Bacon
Charyton C, Elliott O. J., Lu Bo, & Moore JL (2009) The impact of social support on health related quality of life in persons with epilepsy. Epilepsy & Behavior, 16:640-645. DOI: 10.1016/j.yebeh.2009.09.011
Chung L, Pan A, & Hsiung P: (200) Quality of life for patients with major depression in Taiwan: A model-based study of predictive factors. Psychiatry Research, 168(2):153-162 DOI: 10.1016/j.psychres.2008.04.003
Cohen, S. & Williamson, G. (1988) Perceived Stress in a Probability Sample of the United States. Spacapan, S. and Oskamp, S. (Eds.) The Social Psychology of Health. Newbury Park, CA: Sage.
Davis K, & Gavidia-Payne S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability; 34:153-62 DOI: 10.1080/13668250902874608
Dereli F, & Okur S. (2008) Engelli çocuğa sahip olan ailelerin depresyon durumunun belirlenmesi (Determination of depression status of families with disabled children). Yeni Tıp Dergisi, 25:164-8
Dzator, J. (2013). Hard times and common mental health disorders in developing countries: Insights from urban Ghana. The Journal of Behavioral Health Services & Research, 40(1), 71–87. https://doi.org/10.1007/s11414-012-9305-z
Ersoy Ö, & Çürük N. (2009) Özel gereksinimli çocuğa sahip annelerde sosyal desteğin önemi (The importance of social support for the mothers of the children who have special needs). Sosyal Politika Çalışmaları Dergisi, 17:104-10. Available from: http://dergipark.gov.tr/download/article-file/198189. [Last cited on 2018 Mar 20].
Feng S, Tan H, Benjamin A, Wen S, Liu A, Zhou J, Li S, Yang T, Zhang Y, Li X, et al: Social Support and Posttraumatic Stress Disorder among Flood Victims in Hunan, China. Annals of Epidemiology 2007, 17(10):827-833
Gill, Kirrin, Rohini Pande, and Anju Malhotra. (2007) "Women deliver for development." The Lancet 370, no. 9595: 1347-1357 DOI: 10.1016/S0140-6736(07)61577-3
Hoffman, L., Marquis, J., Poston, D. Summers, J. A., & Turnbull, A. (2006). Assessing Family Outcomes: Psychometric Evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68 (4), 1069-1083. https://doi.org/10.1111/j.1741-3737.2006.00314.x
Hu, X., Wang, M., & Fei, X. (2011). Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research, 56 (1), 30-44. DOI: 10.1111/j.1365-2788.2011.01391.x
Kande, I. & Merrick, J (2003). The Birth of a Child with Disability Coping by Parents and Siblings. The Scientific World Journal 3, 741-750
Karande, S & Kulkarni S (2009) Quality of life of parents of children with newly diagnosed specific learning disability Journal of Postgraduate Medicine, 55 (2), 97-103
Lau Y, & Yin L. (2011) Maternal, obstetric variables, perceived stress and health related quality of life among pregnant women in Macao, China. Midwifery. 27:668–673
Lim JW, & Zebrack B: (2008) Different pathways in social support and quality of life between Korean American and Korean breast and gynecological cancer survivors. Quality of Life Research 2008, 17(5):679-689.
Lin, J.D., Hu, J., Yen, C.F., Hsu, S.W., Lin, L.P., Loh, C.H., et. al. (2009). Quality of life and caregivers of children and adolescents with intellectual disabilities: use of WHOQOL-BREF survey. Research in Developmental Disabilities, 30 (6), 1448-1458.
Luther EH, Canham DL, & Cureton VY. (2005) Coping and social support for parents of children with autism. Journal of School Nursing; 21: 40-7.
DOI: 10.1622/1059-8405(2005)021[0040:cassfp]2.0.co;2
Mahani, M.K. Rostami, H.R. & Nejad S.J. (2013) Investigation of quality of life determinants among mothers of children with pervasive developmental disorders in Iran Hong Kong Journal of Occupational Therapy, 23 (1), 14-19 https://doi.org/10.1016/j.hkjot.2013.03.002
Manuel JC (2001) Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26(4):237-46. DOI: 10.1093/jpepsy/26.4.237
Meppelder, M., Hodes, M., Kef, S., & Schuengel, C. (2015). Parenting stress and child behaviour problems among parents with intellectual disabilities: the buffering role of resources. Journal of Intellectual Disability Research, 59(7), 664-677. https://doi.org/10.1111/jir.12170
Meral BF, & Cavkaytar A. (2015) Otizmli çocuk ailelerinin aile yaşam kalitesi algilari (The perceptions of family quality of life of parents of children with autism). Kastamonu Eğitim Dergisi; 23:1363-80.
Mobarak R, Khan NZ, Munir S, Zaman SS, McConachie H (2000) Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology. 25(6):427-33. DOI: 10.1093/jpepsy/25.6.427
Oh, H & Lee E, (2009) Caregiver burden and social support among mothers raising children with developmental disabilities in South Korea International Journal of Disability, Development and Education, 56 (2). 149-167 https://doi.org/10.1080/10349120902868624
Ones, K. Yilmaz, E, Cetinkaya, B & Caglar N (2005) Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers) Neurorehabilitation and Neural Repair, 19 (3), 232-237 DOI: 10.1177/1545968305278857
Onarheim, Kristine Husøy, Johanne Helene Iversen, and David E. (2016) Bloom. "Economic benefits of investing in women’s health: A systematic review." PloS one 11(3) e0150120 DOI: 10.1371/journal.pone.0150120
Ozkubat U, Ozdemir S, Selimoğlu OG, & Töret G. (2014) Otizme yolculuk: Otizmli çocuğa sahip ebeveynlerin sosyal destek algılarına ilişkin görüşleri (Journey to autism: opinions of parents with autistic children on social support perceptions). Ondokuz Mayıs Üniv Eğitim Fakültesi Dergisi; 33: 323-48. Available from: http://dergipark.gov.tr/download/article-file/188069 [Last cited on 2018 Mar 08].
Park, J., Turnbull, A.P., & Turnbull, H.R. (2002). Impacts of poverty on quality of life in families of children with disabilities. The Council for Exceptional Children, 68 (2), 151-170. https://doi.org/10.1177/001440290206800201
Shishehgar S, Dolatian M, Majd HA, Bakhtiary M. (2014) Perceived pregnancy stress and quality of life amongst Iranian women. Global Journal of Health Scence. 6:270–277. DOI:10.5539/gjhs.v6n4p270
Soliday E, Kool E, Lande MB (2000) Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology. 25(2):93-103. DOI: 10.1093/jpepsy/25.2.93
Verdugo, M.A., Córdoba, L., & Gómez, J. (2005). Spanish adaptation and validation of the Family Quality of Life Survey. Journal of Intellectual Disability Research, 49 (10), 794-798. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2788.2005.00754.x
VonDras DD, Pouliot GS, Malcore SA, Iwahashi S (2008) Effects of culture and age on the perceived exchange of social support resources. International Journal of Aging & Human Development, 67(1):63-100 https://doi.org/10.2190/AG.67.1.d
Zimet GD, Dahlem NW, Zimet SG, Farley GK. (1988) The multidimensional scale of perceived
social support. Journal of personality assessment; 52:30-41 https://doi.org/10.1207/s15327752jpa5201_2
Ahmadizadeha, Z. Rassafianib M. Khalilia, M.A Mirmohammadkhanic, M (2015) Factors Associated with Quality of Life in Mothers of Children with Cerebral Palsy in Iran. Hong Kong Journal of Occupational Therapy, 25; 15-22 https://doi.org/10.1016/j.hkjot.2015.02.002
Ajuwon PM, & Brown I. (2012) Family quality of life in Nigeria. Journal of Intellectual Disability Research; 56:61 70. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2788.2011.01487.x
Aras, I. (2014). The quality of life of parents of children with hearing impairments and speech. Doctoral thesis. Zagreb University School of Medicine in Zagreb
Bahar A, Bahar G, Savaş HA, & Parlar S. (2009) Engelli çocukların annelerinin depresyon ve anksiyete düzeyleri ile stresle başa çıkma tarzlarının belirlenmesi (Determination of depression and anxiety levels, and stress coping styles of mothers of children with disabilities) Fırat Sağlık Hizmetleri Dergisi;4:97-112.
Beach Center on Disabilities. (2006). Family Quality of Life Scale. Beach Center on Disabilities, Lawrence, KS, USA.
Bishop SL, Richler J, Cain AC & Lord C. (2007) Predictors of perceived negative impact in mothers of children with autism spectrum disorder. America Journal of Mental Retardation, 112:450-61. DOI: 10.1352/0895-8017(2007)112[450:POPNII]2.0.CO;2
Buratta V, Frova L, Gargiulo L, Gianicolo E, Prati S, Quattrociocchi L. (2003) EUROHIS - Developing Common Instruments for Health Surveys. Copenhagen:
Cakaloz B, & Kurul S. (2005) The investigation of duchenne muscular dystrophy children's family functions and their mothers' depression and anxiety levels. Journal of Clinical Psychiatry; 8:24-30
Carter B., & McGoldrick M. (2005). The expanded family life cycle, (3rd ed). Boston: Allyn and Bacon
Charyton C, Elliott O. J., Lu Bo, & Moore JL (2009) The impact of social support on health related quality of life in persons with epilepsy. Epilepsy & Behavior, 16:640-645. DOI: 10.1016/j.yebeh.2009.09.011
Chung L, Pan A, & Hsiung P: (200) Quality of life for patients with major depression in Taiwan: A model-based study of predictive factors. Psychiatry Research, 168(2):153-162 DOI: 10.1016/j.psychres.2008.04.003
Cohen, S. & Williamson, G. (1988) Perceived Stress in a Probability Sample of the United States. Spacapan, S. and Oskamp, S. (Eds.) The Social Psychology of Health. Newbury Park, CA: Sage.
Davis K, & Gavidia-Payne S. (2009). The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities. Journal of Intellectual and Developmental Disability; 34:153-62 DOI: 10.1080/13668250902874608
Dereli F, & Okur S. (2008) Engelli çocuğa sahip olan ailelerin depresyon durumunun belirlenmesi (Determination of depression status of families with disabled children). Yeni Tıp Dergisi, 25:164-8
Dzator, J. (2013). Hard times and common mental health disorders in developing countries: Insights from urban Ghana. The Journal of Behavioral Health Services & Research, 40(1), 71–87. https://doi.org/10.1007/s11414-012-9305-z
Ersoy Ö, & Çürük N. (2009) Özel gereksinimli çocuğa sahip annelerde sosyal desteğin önemi (The importance of social support for the mothers of the children who have special needs). Sosyal Politika Çalışmaları Dergisi, 17:104-10. Available from: http://dergipark.gov.tr/download/article-file/198189. [Last cited on 2018 Mar 20].
Feng S, Tan H, Benjamin A, Wen S, Liu A, Zhou J, Li S, Yang T, Zhang Y, Li X, et al: Social Support and Posttraumatic Stress Disorder among Flood Victims in Hunan, China. Annals of Epidemiology 2007, 17(10):827-833
Gill, Kirrin, Rohini Pande, and Anju Malhotra. (2007) "Women deliver for development." The Lancet 370, no. 9595: 1347-1357 DOI: 10.1016/S0140-6736(07)61577-3
Hoffman, L., Marquis, J., Poston, D. Summers, J. A., & Turnbull, A. (2006). Assessing Family Outcomes: Psychometric Evaluation of the Beach Center Family Quality of Life Scale. Journal of Marriage and Family, 68 (4), 1069-1083. https://doi.org/10.1111/j.1741-3737.2006.00314.x
Hu, X., Wang, M., & Fei, X. (2011). Family quality of life of Chinese families of children with intellectual disabilities. Journal of Intellectual Disability Research, 56 (1), 30-44. DOI: 10.1111/j.1365-2788.2011.01391.x
Kande, I. & Merrick, J (2003). The Birth of a Child with Disability Coping by Parents and Siblings. The Scientific World Journal 3, 741-750
Karande, S & Kulkarni S (2009) Quality of life of parents of children with newly diagnosed specific learning disability Journal of Postgraduate Medicine, 55 (2), 97-103
Lau Y, & Yin L. (2011) Maternal, obstetric variables, perceived stress and health related quality of life among pregnant women in Macao, China. Midwifery. 27:668–673
Lim JW, & Zebrack B: (2008) Different pathways in social support and quality of life between Korean American and Korean breast and gynecological cancer survivors. Quality of Life Research 2008, 17(5):679-689.
Lin, J.D., Hu, J., Yen, C.F., Hsu, S.W., Lin, L.P., Loh, C.H., et. al. (2009). Quality of life and caregivers of children and adolescents with intellectual disabilities: use of WHOQOL-BREF survey. Research in Developmental Disabilities, 30 (6), 1448-1458.
Luther EH, Canham DL, & Cureton VY. (2005) Coping and social support for parents of children with autism. Journal of School Nursing; 21: 40-7.
DOI: 10.1622/1059-8405(2005)021[0040:cassfp]2.0.co;2
Mahani, M.K. Rostami, H.R. & Nejad S.J. (2013) Investigation of quality of life determinants among mothers of children with pervasive developmental disorders in Iran Hong Kong Journal of Occupational Therapy, 23 (1), 14-19 https://doi.org/10.1016/j.hkjot.2013.03.002
Manuel JC (2001) Risk and resistance factors in the adaptation in mothers of children with juvenile rheumatoid arthritis. Journal of Pediatric Psychology, 26(4):237-46. DOI: 10.1093/jpepsy/26.4.237
Meppelder, M., Hodes, M., Kef, S., & Schuengel, C. (2015). Parenting stress and child behaviour problems among parents with intellectual disabilities: the buffering role of resources. Journal of Intellectual Disability Research, 59(7), 664-677. https://doi.org/10.1111/jir.12170
Meral BF, & Cavkaytar A. (2015) Otizmli çocuk ailelerinin aile yaşam kalitesi algilari (The perceptions of family quality of life of parents of children with autism). Kastamonu Eğitim Dergisi; 23:1363-80.
Mobarak R, Khan NZ, Munir S, Zaman SS, McConachie H (2000) Predictors of stress in mothers of children with cerebral palsy in Bangladesh. Journal of Pediatric Psychology. 25(6):427-33. DOI: 10.1093/jpepsy/25.6.427
Oh, H & Lee E, (2009) Caregiver burden and social support among mothers raising children with developmental disabilities in South Korea International Journal of Disability, Development and Education, 56 (2). 149-167 https://doi.org/10.1080/10349120902868624
Ones, K. Yilmaz, E, Cetinkaya, B & Caglar N (2005) Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers) Neurorehabilitation and Neural Repair, 19 (3), 232-237 DOI: 10.1177/1545968305278857
Onarheim, Kristine Husøy, Johanne Helene Iversen, and David E. (2016) Bloom. "Economic benefits of investing in women’s health: A systematic review." PloS one 11(3) e0150120 DOI: 10.1371/journal.pone.0150120
Ozkubat U, Ozdemir S, Selimoğlu OG, & Töret G. (2014) Otizme yolculuk: Otizmli çocuğa sahip ebeveynlerin sosyal destek algılarına ilişkin görüşleri (Journey to autism: opinions of parents with autistic children on social support perceptions). Ondokuz Mayıs Üniv Eğitim Fakültesi Dergisi; 33: 323-48. Available from: http://dergipark.gov.tr/download/article-file/188069 [Last cited on 2018 Mar 08].
Park, J., Turnbull, A.P., & Turnbull, H.R. (2002). Impacts of poverty on quality of life in families of children with disabilities. The Council for Exceptional Children, 68 (2), 151-170. https://doi.org/10.1177/001440290206800201
Shishehgar S, Dolatian M, Majd HA, Bakhtiary M. (2014) Perceived pregnancy stress and quality of life amongst Iranian women. Global Journal of Health Scence. 6:270–277. DOI:10.5539/gjhs.v6n4p270
Soliday E, Kool E, Lande MB (2000) Psychosocial adjustment in children with kidney disease. Journal of Pediatric Psychology. 25(2):93-103. DOI: 10.1093/jpepsy/25.2.93
Verdugo, M.A., Córdoba, L., & Gómez, J. (2005). Spanish adaptation and validation of the Family Quality of Life Survey. Journal of Intellectual Disability Research, 49 (10), 794-798. https://onlinelibrary.wiley.com/doi/full/10.1111/j.1365-2788.2005.00754.x
VonDras DD, Pouliot GS, Malcore SA, Iwahashi S (2008) Effects of culture and age on the perceived exchange of social support resources. International Journal of Aging & Human Development, 67(1):63-100 https://doi.org/10.2190/AG.67.1.d
Zimet GD, Dahlem NW, Zimet SG, Farley GK. (1988) The multidimensional scale of perceived
social support. Journal of personality assessment; 52:30-41 https://doi.org/10.1207/s15327752jpa5201_2
Jacob, U. S., Pillay, J., & Oyundoyin, B. M. (2021). Quality of Life of Mothers of Children with Intellectual Disability: Do Social Support, Maternal Stress and Socio-Economic Status Play a Role? . Engagement: Jurnal Pengabdian Kepada Masyarakat, 5(1), 1-18. https://doi.org/10.52166/engagement.v5i1.643
